In January I published one of the most popular blogs I’ve written on this site – “When Exercise Becomes A Problem”. Thank you so much for all the people that got in contact, to ask questions, to understand more, who were inspired to read more about the subject or think twice about what exercise might mean to people. I’m really glad it made an impact.
So I didn’t do a great job at following it up.
This is a bit of an update on eating disorder recovery, and exercise addiction.
Its been a difficult start to the year. There have been a variety of events and stressors in my life – many way beyond my control, which have significantly impacted my mental health and my ability to move steadily forwards with eating disorder recovery. I’ve suffered from massive setbacks in most areas of life at one point or another.
But I’ve learnt so much.
And similar to how a year ago, I learnt so much about self-harm because I was supported through an incident rather than having support/care/treatment withdrawn. I am learning a lot about my eating disorder because I continue to be supported despite the ups and downs and setbacks and relapses.
I have never had eating disorder treatment that has followed me through the ups and downs of my chaotic life. Previously care at home being chaotic meant I was unable to engage with eating disorder programmes (or they were unwilling/unable to engage with me) so treatment was terminated. Relapses in ED behaviours resulted in treatment being withdrawn. Mental health crisis meant that I was considered unable to engage. I’ve never had the opportunity to continue being supported in eating disorder recovery through these events. Until now.
And this has helped me start to explore what recovery means for Ellie, in the context of my chaotic life, the situations that are beyond my control and at times traumatic, my fluctuations in mental well-being. These things aren’t going to go away any time soon. Recovery for me means learning how to batten down the hatches to weather the stormy times. And right now, that involves an eating disorder team helping me work my way through those times, instead of jumping ship and leaving me blind at the helm.
I’ve always been told what recovery should look like. Being a certain weight, doing a certain amount of exercise, eating 3 meals and 3 snacks and a wide variety of foods, being weighed when it suited the ED team – not me… but now we are exploring what recovery looks like on my terms, and I’m still not 100% sure what that actually looks like, but the point is I’m getting to explore where I didn’t have the choice before.
Understanding recovery and exercise
My only interventions regarding over-exercise and my eating disorder previously have been total exercise bans. Which teach me nothing. Every single time, my exercise problem comes back worse than before. The back end of 2023/beginning of 2024 this had reached an all-time peak. My whole life was dominated by exercise. There wasn’t time for anything else, not friends, not family, not food, not work, not forms of exercise that I actually enjoyed and definitely not rest.
4 months on I’m maybe not where ideally people would like me to be regarding exercise and rest, but my attitude and understanding around it has changed significantly, and although I’m generally unable to rest, there has been some decrease in intensity and more importantly an increase in more enjoyable forms of exercise. I don’t feel quite as bullied as I did before, but I am still over-motivated to move and feel overwhelmingly guilty if I don’t.
What has helped?
We spoke extensively about my exercise. We spoke about it now and through the course of my life. We explored why exercise became such a coping mechanism. We spoke about what Ellie enjoys and what her goals are, versus what Anorexia would like me to do and what her goals are. They understood that being active is part of who I am. Instead of banning me from the gym entirely, we scheduled a meeting with the gym manager, myself and a member of the ED team. We talked about the problem at hand, we worked together to think of a reasonable plan, discuss what I did and how it was basically cancelling each other out – so I would never reach any of my own personal goals, and we met again with one of the personal trainers. I worked with the personal trainer for a couple of sessions to try and extract my goals from Anorexia’s, to learn about the importance of rest, and to have some accountability. Now that people at the gym knew my problem, that did help me think twice before going straight in for my rigid exercise routines. More people at the gym (both staff and other gym members) are aware of my situation – and are less likely to push me further than I should go, or to make unhelpful comments. I have at times walked away from a class when I have felt uncomfortable (for example a circuit that involved timing the exercise based on calories burned) and this has also been OK.
I really still have a lot of work to do but there have been some major changes. The main one being that I am not excessively on the cross trainer multiple times a day (or generally at all, though I do sometimes slip back into it for a couple of days). Yes I do exercise every morning and evening, but its varied – sometimes its a run, sometimes its weights, sometimes its a class, sometimes its yoga. I’ve even started skating and doing acro again. Because I’m not running every single day and being pushed forward by Anorexia’s bullying voice, I’m actually enjoying running more. I go to the gym for the social aspect, not just to burn calories. I feel part of the community there and have people I chat to and hang out with, its not just about the exercise anymore. On a recent trip to France to see a friend I got great joy out of running in the early morning April sunlight along the canals, soaking up the beautiful French countryside and feeling energised rather than depleted.
Understanding recovery and trauma
For the first time ever in eating disorder treatment I have been allowed to speak about trauma and how that plays a role in my attitudes towards food and my body. Of course there is still a hell of a lot I can’t and don’t speak about or even understand myself. But of the things that I do understand, or things that affect me, we are able to explore that and not brush it aside.
What has helped?
Acknowledging that trauma does play a significant part in my eating disorder and attitudes to food and my body. And that some of this is on-going. Understanding that some battles are best not fought, but thinking of back-up plans that keep me safe and healthy in those circumstances.
We have looked at the specific impact of my trauma-related inability to use heat-producing devices which means I can’t generally cook for myself. We explored which of these might be easier to address and settled on if I was able to use a microwave and an air fryer (I can already use a kettle) that this would provide me with so much more freedom over my food than I have had in years – instead of having to rely on others all the time. I touched a microwave for the first time in 5 years, and put a cup of water in and shut the door. This sounds like nothing to most people but for me its a huge step.
Unfortunately this has all had to be put on pause as I was living in an unsafe situation, but throughout this time my therapist has reminded me that we will be coming back to it, once its safe enough to manage. I’m constantly reminded that its still in their mind, and we don’t stop working on it entirely just because there was a wobble.
Understanding recovery and mental illness
Instead of turning me away at points where I am in crisis, they have gently supported me and let me know I can feel held. This in itself is massive. Even through a significant mental health crisis, where I actively tried to push away support as I was convinced I was a waste of time, a hopeless case and unable to recover – they refused to let this happen. Their absolute belief in me when I have none has gone a long way into me trusting its worth investing in this process.
What has helped?
All too often, having mental health problems and an eating disorder is a huge barrier to treatment. Eating Disorder services don’t like working with mental illness (especially in crisis or if risk is present) and mental health services don’t feel confident working with eating disorders. This time, things have felt more collaborative – me, my carer, my community psychiatric nurse and the ED service met together. They communicate with each other. My CPN has always felt a bit anxious about pushing me too far about eating disorder stuff, but (much to my dismay) the eating disorder service modelled how to be more assertive when addressing my eating and exercise. This has meant that try as I might, my eating disorder can’t run rings around professionals anymore. The same goes for my regular carer – she has been involved in my care and received a course of 1-1 carer sessions which has boosted her confidence in managing my eating disorder. Sometimes I wish all of this didn’t exist, so I could slip down the cracks and get on with what Anorexia wants me to get on with – but I know that the real Ellie is grateful for this deep down.
Understanding recovery and neurodivergence
There are aspects of me that are somewhat neurospicy. I struggle with change, changes of plan, rigidity (which is a problem when in my eating disorder but can sometimes be a benefit in recovery as I can also be quite rigid about “getting it right”), sensory stuff is a big issue for me, things feel “right or wrong” for no particular reason, I struggle with choosing things, I can’t handle eating with a big spoon. All things that can, and do impact my eating and my recovery. In the past I have struggled in some eating disorder treatment settings because I wasn’t allowed to eat with a small spoon (I have never eaten with a big spoon in my life, and my family are the same), prefer to sit in the same place when I eat, have very specific ideas about which foods go with what. And some of these things have lead to me being “unable to engage in treatment”- and there was very little wiggle room for accepting that some of these things were just me and how I am, not eating disorder behaviours. Being asked to eat dessert after lunch is hard enough, but being told I have to eat it with a big spoon that makes me physically shudder (nails down a chalk-board sort of thing) is nigh-on impossible. For the first time, we’ve talked about these things and how they might influence what the reality of recovery looks like for me
What has helped
Acknowledging that some things are eating disorder related and some things aren’t, and some things do get worse when I’m more anxious so are more likely to be prevalent when I am less well. In particular we have discussed how much I struggle with decision making, choosing what to eat, managing the supermarket and all the choices there etc. In the past treatment has often encouraged full recovery to be something that involves eating a variety of different meals each day. But this is overwhelming for me, because there are too many choices, too many decisions and I literally will melt-down because of decision fatigue, not because I don’t want to eat. So we discussed that maybe a way forward would be to choose meals for breakfast, lunch and tea that I then eat for the whole week, before making a new choice for the next week – therefore reducing my decision-making from over 20 times a week, to once.
I can spend an epic amount of time in supermarkets, just looking at food, but when it comes to doing an actual food shop I flounder, there is too much choice, its too overwhelming. So I’ve started shopping at Lidl. Not only is it cheaper (handy on an unstable income) but most Lidl shops are laid out more or less the same, and there is not a particularly wide choice of each different food. When things are going smoothly now I can do a quick Lidl shop for my weekly food plan in 20 mins, without help. Which was impossible before.
For the first time I’ve considered how my sensory issues with clothing might affect my body image and therefore recovery. I’m quite well known for not wearing leg coverings – and this is largely a sensory thing, I really struggle with the feeling of material on my legs. So I go bare-legged most of the year. I also struggle with trousers, so I wear leggings, shorts, skirts and dresses. But I’ve realised this extends a lot further, and social pressure to constantly wear different outfits, or the have the right clothes, maybe doesn’t fit for me. I really struggle with the sensations of different materials, bands, fits – and it makes me hyper sensitive to my body. I’ve started to pay more attention to my clothing from a how it feels point of view rather than a how it looks or how socially acceptable for the situation it is. Its not quite that straight forward but it has helped my body image, to not constantly be able to feel every inch of my body all the time. It has also helped to reduce the options of clothing I have to wear. Though I have realised I have a problem with buying black yoga/cycle shorts – different ones can feel very wrong or right at different points, even though they look the same to everyone else.
Understanding recovery and body image
Although I have had body image input in the past its either been in a group setting where I’ve felt too ashamed of my body to really speak about it properly, or I’ve simply been too distressed by my body to engage in exercises. Body image takes up about 95% of my headspace, is something that never really gets any better when I’m in a remission period, and is nearly always at the forefront of my mind in relapse.
What has helped?
We have talked about body dysmorphia, we’ve talked in raw detail about how I perceive my body, and how this can change literally within seconds. How I find life so disconcerting when I genuinely don’t know what I’m going to see in the mirror. My self-image is very distorted (and fluctuates) and I do know this from previous interventions that have given me concrete numbers to evidence this. But despite that, I can’t really ignore what I see for myself, and my body image and how I see myself continues to distress me significantly on a daily basis. I’ve been allowed to cry and be upset about this without fear of judgement, or people saying “it doesn’t matter what other people think” etc. Because it does matter what I think. I don’t know if I’ll ever get to a better place with body image, from the age of 3 I’ve had problems with it. But at least I have a non-judgemental space to be honest about how I feel and explore that a bit more.
Understanding recovery and relapse
I’ve had an eating disorder for over 20 years. And I’ve pretty much had issues with most eating disorder behaviours during that time. Although I’ve reached periods of relative “wellness”, this is never sustained very long. And in particular, I’m unable to sustain this independently without carers or support workers supporting eating.
What has helped?
We have started to explore why I am unable to sustain “recovery” for long. Is it because I am striving for something thats unrealistic for me? Is it because I define recovery as a very fixed term with fixed criteria? Is it because we don’t plan for the inevitable ups and downs in life (which are particularly accentuated in mine) and only plan for a nirvana where I have all the things I need for recovery easily accessible? Is it because we’ve missed some major things before? A lot of the points I have discussed above have all helped me start to understand some of these things that mean I repeatedly relapse.
I have relapsed during this course of treatment – quite significantly at points. But because I’ve been supported through this, helped to explore and climb my way back out, I’ve started to understand more some of the specific triggers for relapse. Some of these include housing instability, wanting to gan back control in a life where I have little control over a lot of aspects, burn out and not prioritising food…and many more. Some of these are more easily dealt with. If I can’t prioritise food and manage decisions around food then I can go back to basics, mechanical eating, just get the fuel in. And thats OK for a period of time. Some of them are harder to manage – my social situation remains chaotic and sometimes I just simply don’t have the means to get access to food, or the headspace.
When I’m relapsing I don’t always have the desire or means to get out, or belief that I can turn it around. Sometimes climbing a hill I’ve already climbed feels too much. But at the moment I have people pointing out where I’ve already anchored points up the slope – so all I have to do is reach to grab them and its easier to pull myself up than before. But I still need reminding.
I still have a long way to go. I’m not in the greatest place with eating at the moment but I am much wiser than I was at the beginning of the year. I’m really grateful for the support I’ve received and I am determined not to throw it all away. I do want to show that there is hope for people who have been unwell for a long time. That sometimes by doing things a different way we can find that life worth living.